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Welcome to PTEN World!

Since 2010, PTEN World has been a support and advocacy group for people and families living with PTEN hamartoma tumor syndrome (PHTS). This includes those impacted by Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and PTEN-related Proteus-like syndrome.


Our members can connect and support each other. Some members have also chosen to raise PTEN awareness, advocate for research, and more. If you'd like to join our group, then we hope you'll sign up!  

 **Disclaimer: This site,, is not intended to give medical advice. All content, which includes images, text, graphics, and other information, that is accessible on this site or through this site ("Content") is for informational purposes only. The Content is not a substitute for professional medical advice from a licensed healthcare provider who is familiar with your whole situation. Screening guidelines can vary in different geographic regions, and information may change without notice. does not endorse and is not responsible or liable for any information exchanged between site users or for any information found on third party websites. By clicking on any link, you are doing so at your own risk, and will be subject to the terms and conditions and privacy policy of the respective site. 

Do not use this website for medical emergencies.  If you think you may have a medical emergency, please call your doctor or call 911 immediately. Your usage of is solely at your own risk.

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