Welcome to PTEN World!
Since 2010, PTEN World has been a support and advocacy group for people and families living with PTEN hamartoma tumor syndrome (PHTS). This includes those impacted by Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and PTEN-related Proteus-like syndrome.
Our members can connect and support each other. Some members have also chosen to raise PTEN awareness, advocate for research, and more. If you'd like to join our group, then we hope you'll sign up!
Do not use this website for medical emergencies. If you think you may have a medical emergency, please call your doctor or call 911 immediately. Your usage of ptenworld.com is solely at your own risk.